Some of you already know my dear daughter has been diagnosed with Chiari. She has multiple symptoms and was scheduled to have surgery in August. Because of Chiari malformation, we have learned this has been the cause of many of her medical issues. She went to many doctors and kept on being told she suffered from migraines.After a long night at the E.R. and the results of her MRI we learned she has Chiari. This malformation has caused her brain to protrude and the base of her skull now lies on her C2 vertebrae. She has a build up of cerebral spinal fluid and, any other complications of Chiari.
The reason why she decided not to have the surgery in August was a bad feeling about having the surgery here by a neurological surgeon who immediately said surgery and never really took the time to explain more about the dangers of this surgery or other complications. We also learned he didn't have a great "medical report card". After she had her first consultation with this Neuro surgeon she put a lot of thought, research, and prayer, into making some very important decisions. She decided to go to the Mayfield Clinic in Ohio. She has her consultation this coming Tuesday, September 16, 2014. I know most of the blogging I do is about the Silhouette cutting machine, but today I want to make it all about my daughter and the many others who suffer with this.
Please, watch the video above to learn more and say a little prayer for my daughter, the family members of Chiari patients, and of course the many who have battled and continue to battle this debilitating neurological disorder. It is scary, painful, and life changing.
May the good Lord bless all of you for your prayers and thoughts,