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Thursday, September 11, 2014

The Battle of Chiari



Some of you already know my dear daughter has been diagnosed with Chiari. She has multiple symptoms and was scheduled to have surgery in August. Because of Chiari malformation, we have learned this has been the cause of many of her medical issues. She went to many doctors and kept on being told she suffered from migraines.After a long night at the E.R. and the results of her MRI we learned she has Chiari. This malformation has caused her brain to protrude and the base of her skull now lies on her C2 vertebrae. She has a build up of cerebral spinal fluid and, any other complications of Chiari.

The reason why she decided not to have the surgery in August was a bad feeling about having the surgery here by a neurological surgeon who immediately said surgery and never really took the time to explain more about the dangers of this surgery or other complications. We also learned he didn't have a great "medical report card". After she had her first consultation with this Neuro surgeon she put a lot of  thought, research, and prayer, into making some very important decisions. She decided to go to  the Mayfield Clinic in Ohio. She has her consultation this coming Tuesday, September 16, 2014. I know most of the blogging I do is about the Silhouette cutting machine, but today I want to make it all about my daughter and the many others who suffer with this.

Please, watch the video above to learn more and say a little prayer for my daughter, the family members of Chiari patients, and of course the many who have battled and continue to battle this debilitating neurological disorder. It is scary, painful, and life changing.

May the good Lord bless all of you for your prayers and thoughts,
Debbie

29 comments:

  1. You will all be in my thoughts and prayers Debbie, I prayer our Father in heaven will be the hands of the doctors and nurses as they treat your daughter.

    Lisa

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  2. Debbie, I will be praying for your daughter as she has her consult on Tuesday! I pray for her to have peace of mind, I pray for the dr to have the skill and knowledge to do what needs to be done and to assure her that the he/she knows what he/she is talking about. I pray God's will be done in this siyuation. hugs, Patty

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  3. Oh Debbie, I am really sorry for your family to have this medical issue to battle. I wish the very best for your daughter as she undergoes surgery to start the healing. And know there are many, many of us who care deeply for your well being.

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  4. My thoughts and prayers are with You and your beautiful Daughter as she battles this little known condition. Hugs Pauline UK

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  5. Debbie, please know you and your family are in my thoughts and prayers. Best of luck to you all.

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  6. Debbie-

    I will keep you, your daughter, and your family in my prayers. "Now may the God of hope fill you with all joy and peace as you believe in Him so that you may overflow with hope by the power of the Holy Spirit." Romans 15:13.
    I love to pray for people by name. Would you be willing to share your daughters name? (Sorry, if you have already and I missed it.)
    "He will sustain you." Psalm 55:22
    Thank you for all you do Debbie.

    Kristina Miller

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    1. Hi Kristina, The power of prayer is amazing. Thank you for asking my daughter's name. I forgot to tell everyone and I too like using the names of people I pray for. Her name is Jennifer. Bless you for your prayers. Hugs, Debbie

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  7. Debbie, you and your family and all others with this disease are certainly in my prayers. Please let us know how her appt. goes - will be thinking about you!

    Jackie

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  8. Prayers for healing are being said.

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  9. How awful! I have never heard of this disorder before! Does it primarily occur in young women, as the majority of the patients in the video appear to be? Prayers to your daughter and to others suffering from Chiari!

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  10. All my thoughts and prayers are coming to you from South Africa. xxxx

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  11. I am so sorry for your daughter and you, her family. I will share this video on my facebook.

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  12. Positive thoughts and prayers headed your way. I actually know of someone else with this, but had no idea it was an ongoing battle after the surgery.

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  13. Consider prayers already going up. I am sorry to her about his and hope for successful surgery and a complete recovery.

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  14. Debbie it goes without saying. Love and hugs to all of you. Is she covered by insurance for her treatment? Is there anything we can do to help apart from send all our love and healing thoughts xxx

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  15. I'm so sorry to hear about your daughter's medical conditions! I will definitely keep your family in my thoughts and prayers. I'm so glad she listened to her instincts and delayed the surgery for more research! I think GOD was truly watching over her. Bless you and your daughter! Jenny

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  16. So sorry to hear what you and your daughter are going through. You are both in my prayers.

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  17. To all of you wonderful sisters, I thank you so much for your thoughts and prayers. All of you are beautiful souls. Bless you and sending my love and hugs, Debbie

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  18. Praying for Jennifer, you, and all of your family, Debbie! I'm so sorry you all have to go thru this. BIG HUGS!!

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  19. Hugs and prayers coming your way....
    Jan

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  20. Thank you for sharing this. I have a friend who has this. My son is experiencing similar symptoms and we are seeing the neurologist. Our thoughts and prayers for the Lord's blessings and healing.

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    1. I'm sorry to learn your dear son is experiencing these horrible symptoms of Chiari. I will add him to my prayers. Please let me know how everything turns out and please know you can email me any time. My email link in on the right hand side of my blog. Just click on the "Email Me" link. Blessings, Debbie

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  21. My heart aches to know that anyone has to go through anything they have no control over. Especially when it comes to your own child. My thoughts are always followed up with prayer. Your family especially Jennifer will be in my thoughts daily.

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  22. Praying for Jennifer and all of you. Thank you for sharing the video. I am here for you if I can do anything at all please call.

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  23. Hugs and prayers to you and your family. I hope all goes well tommorrow for Jennifer. Thank you for all your videos.
    Ange UK

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  24. Today is the 17th. I'm hoping things went well yesterday with your daughter's appointment yesterday and that you have answers to some of your questions. I have been, and will continue to pray for your daughter and your family.

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    1. Jeanie, thank you for thinking of us. Sadly, Jennifer has to go back for two more tests and another consultation. They can tell she has some spinal damage, but they are not sure to what extent. My poor daughter has been to doctor after doctor over the years. She always knew something was not right. I wonder if they would have caught this earlier, if she would have the spinal damage. The numbness in her face is also concerning. Another appointment and another sitting on pins and needles while we wait to learn more. It's just so nice of you to remember and ask about my dear daughter. Bless you. Big hugs, Debbie

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  25. Debbie, my prayers go out to your daughter and to your whole family. Nothing worse than not knowing...but thankfully she is in God's hands. Take care and give her our blessings.

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  26. Hi Debbie! Wondered where you were, but also knew you have had many personal challenges lately and thought I'd give you privacy and peace. So sorry to hear all that's been going on, but as always am placing you and yours in God's capable and loving hands. Am sending prayers for you and your hubbie's continued recovery and for a successful surgery and quick recovery for your daughter. Keep in touch when you can and God bless!

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